A boy named Jonah had been diagnoses with Sanfilippo syndrome. Sanfilippo Syndrome is caused by a single gene defect. Because of that defect, an enzyme is not produced. This enzyme's job is to break down heparan sulfate, a long sugar chain. If the heparan sulfate is not broken down, it's stored in every cell, and that causes a cascade of bodily dysfunctions. The father works on a tv show as the camera man and on that show one of the actors wants to do something special to help everyone out. Jonah’s ending result could be death.
I think that was the actor is doing is so nice to the father. To have someone that cares about me and not just being mean to everyone because there the star is what makes this world a good place to be. I still think that it is sad that he has to die in the ending result. I wish there was a cure that could stop this from happening.
http://www.cnn.com/2013/05/02/health/jonah-jill-wood/index.html?hpt=hp_c4
Replies
I feel bad for Jonah, but what the actor is doing is great!
I feel bad for Jonah to have to be dealing with this. Its a good thing that people are trying to help him get better.
This is so sad to hear! I hope they can find a cure for Jonah! That is nice of the star though!
Nice to hear about somebody reaching out to someone else in need. It is really to bad that Jonah has to go through this though.
This is so sad! I hope doctors can find away to help Jonah. Its so cool how famous people come around and help others:).
What the actor is doing is so nice! I hope they can find a way to help Jonah out.
That's sad that he has so little time left, but maybe it will encourage people to try to find a cure.
I think that's really sad. I hope that they can find a way to help. I mean my heart aches for that poor little kid. The actor defiantly has a heart.
Jonah's condition is so sad! I hope they can help him and that actor is very kind!
that would be terrible knowing the end result is that, that actor is very nice for wanting to help out also
-
1
-
2
of 2 Next