Shane Michael Haley was born anencephaly, a birth defect that causes parts of the brains to be missing. When this happened the child lives for anywhere from a few hours up to a couple days. Shane lived for 4 hours. When the parents found out about this, they made a little bucket list for him to complete before passing away. While he was in the womb, he got to meet the Philadelphia Phillies, go to the top of the Empire State Building, and also share a cheese steak with his parents. After he was born, he got to meet his entire family and was baptized into the Catholic faith. He then died peacefully in his mother's arms. More than 700,000 follow their Facebook page, "Prayers for Shane". His parents thanked everyone and were so happy that he got to spend his entire life in the arms of loved ones. They added that he will always be 'our little miracle.'
How would you feel if you were the parents of a child diagnosed with this?
Replies
Great job!!
If I had a child with this disorder I would just try to spend as much time with him/her as possible.
I would be devastated.
I would be really sad and full of anger. It would take me awhile to get over something like this.
Why would you be angry?
I would make every moment count. It would be a very sad situation, and it would be very hard to get through.
Yeah, I thought that the parents did a very good job of staying positive through the whole journey which would be very hard to do. I think that it has strengthened them a lot and they will always cherish the moments with Shane.
I would be very upset but there is nothing you could do about it. Except make the time you have with your child worth it. Just like this family did.
Yes. It is so unfortunate that they have to be put through this terrible situation but they looked at the bright side of things and did everything they could to be happy.
I would be sad but also, I would spend every second with them.
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