Rafi Kopelan keeps busy with her Play-Doh, July 2012.

Rafi Kopelan is a 5-year-old girl who can do all the things just like other typical 5 year olds. The only problem is she has blisters covering her body from scalp to her feet. Her coreneas are scratched, her toes are fused together and she can barely swallow because her esophagus is lined with so much scar tissue. Rafi was born with a rare connective tissue disorder called epidermolysis bullosa (EB). This genetic disease causes her skin to break down in response to the slightest friction. Even the scratch of a fingernail or the tag on the back of her shirt will cause her skin to tear or erupt in blisters, leaving 75% of her body covered in painful, open lesions. Because of this terrible rare disease that this little girl is suffering through, professionals have started researching how to treat the disease.

This would suck to have and i feel really bad for her!!! What do are your thoughts on her and what shes going through? Would you be able to live like that?

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